I am a physician who became a lupus patient and decided to let my inner knitter take over my life.
Saturday, September 11, 2010
Today I Was Ugly
Today I was ugly. Not physically - I was well-groomed and matching and had a new product in my hair - but emotionally. I was irritable and once rubbed the wrong way, there was yukky resentment bubbling inside my head. A friend at knitting complained about her job, and all i could think was what a blessing it is to be able to work. She named some legitimate things that are a problem with her work; inside I said "You should be glad you can work." She complained about her schedule; "Hell, my schedule is totally dependent on what my body and this disease are doing today." She continued to complain, "Jeez, would you suck it up, you big baby." I just didn't have graciousness and light in me today. Thank goodness I was holding it in, although I think the tone of some of the thoughts I actually uttered was not the most generous.
I've been struggling. This long ordeal with having a sudden worsening in my health, and having to set a new standard for making myself deal with pain and fatigue and disability, it has just been wearing me down. Lately I ask myself every day why people do this, if there's a point, if it is worth it. So far my answers have always been "because we have to", "yes" and "yes", but will I get to a day when those answers change? It's just so damn hard, all of it. The sitting down and the standing up. The awakening and the laying down to sleep. The cooking, the fetching, the dressing, the washing. The household chores.
But the past week has brought some relief, even if it hasn't completely chased away my doubts. My arm feels stable again. I no long feel that nagging weakness and feeling that things are out of place. I am confident when I raise my arm that the muscles won't spasm and make the fracture shift and make me scream. I can reach for something without wondering how it will go, or whether I should have used my left hand. Pain is still there, but not gnawing at the bone, keeping me awake and making it impossible to sit still.
Other good things have moved me this week. My knitting is better. My hands no longer feel like they are accommodating a weak link when I hold the needles. I can knit my usual hours and end a day feeling okay, able to get up the next morning and knit again. I've especially enjoyed my baths, as I can trust myself to lie back and put my head in the water and relax. No arm spasm will interrupt and make me flail and catch my breath in fear.
I Skyped with my daughter today. You might think we do it all the time, but sometimes the missing is too intense, and neither of us can tolerate a flood of tears and the dredging up of sadness. We talked for an hour. She toured me around her apartment. She showed me classwork she has completed, fascinating now that she is creating every day in so many ways. The photo is a piece of cloth that she dyed to match a flowered shirt, an assignment for her fabric class. And she made me laugh my ass off. Falling over, bellowing, not carrying how I looked laughing. It washed out some of the ugly. Maybe most of it. I feel inspired now, to do something interesting. I'm going to experiment with some slip stitch crochet that I just read about. My evening will be fun, and hopefully I won't be wondering if this day was worth it.
Peace.
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It's odd reading this today. I've been bellowing (partially in my head) about my new job. I just finished watching "Office Space" and thinking, "Yea, it's kinda like that."
ReplyDeleteSometimes it's hard to be grateful and daily remember that things can get worse (and that things were worse). So you probably have to ignore us a lot of the time while we speak selfishly.