Making Fun in Bad Times

Just now I wrote four paragraphs and accidentally hit an unknown key and it disappeared. That's the theme of the past two months-put in a lot of effort for nothing. I took two chemo treatments that didn't work and had side effects; I put time and attention into a man who clams up under pressure; I began exercising only to find that a flare made it impossible; I prepared a pile of beautiful baby room accessories and clothing and cannot begin the market on time (you can see examples below).

I am in limbo, fighting a flare without specific meds for it. I rarely leave the house due to pain and lack of energy and frequent infection. I can't start the market with my comrades next Sunday. I have prepared and prepared and I can't carry on until something ends this.

I'm still coming to terms with the rituximab failure. Four years ago, that medicine was like a miracle. In a lot of ways it liberated me, making me healthy enough to get out of the house, be with friends and family, build a market business instead of just existing on the internet. Now, one bad treatment cycle and my doctor has stopped it. The next medication choice leads us into uncharted territory.

Today I recognized that creeping self-pity and overwhelming sadness and chose some activities to fight it. I re-read Knit 2 Together, Patterns and Stories for Serious Knitting Fun. Tracey Ullman and Mel Clark put some unusual patterns and fun narrative together, and they seem better and more useful to me now that the first time I read it. I have lots more knitting knowledge and experience and more appreciation for elegant construction and a sense of design humor.

I also pulled out a box of Seinfeld dvds, and I'm going to work my way through several seasons. It is perfect for a knitting accompaniment. There's no action for me to look up and follow. Conversation is the whole show-what happened or didn't happen or should have happened, nothing too banal or trivial to discuss. In my family, where each one's opinion is too important to keep to oneself, this sounds very familiar, and the show makes me laugh like a crazy person.

I have a crockpot of my favorite flageolet beans. Interesting food is more important when you eat alone at home day after day. It's a cheap luxury and one of the few ways I can impact my disease right now.

I've promised myself to keep writing when things are bad. This account should always be about the totality of having this damn disease, not just the triumphal moments.

Peace.

Black Women Do Knit; If I Wasn't Depressed I'd Put it in Caps

Wow, I haven't posted in a while and I forgot that I changed my format. I was excited when I saw the orange swirly background. I came because I learned something today. I was fooling around on Ravelry and found Ebony Elite Sistah Friends group - a large group of primarily African-American women knitters. Yes, we do exist! More than 600 members strong, 26 pages of members, overwhelmingly sistahs, pages of tan, brown, beige, light, bright, almost-white, ebony, near-ebony women who know the joy of craft. Hallelujah. Locations include most of the states, many in the UK, a few in the Caribbean, and at least one in Ireland. Black women knit. Amen.
I looked at every photo/icon, feeling irrationally that if a woman was brown and lived in my time and knitted, I must know her. It probably seems crazy, with all the knitters I know and have as close friends, that race is anywhere in this equation. It's just that I was afraid we were not feeling the joy of this fabulous past-time/obsession/preoccupation. I didn't want it to be some elite, separate activity like tennis or golf, with just a trickle of exposure for Black women.

I am doin' more than just talking about knitting. I'm proud of the lace scarves that I've created lately. I promise photos when they finish blocking. I'm also happy with my "little" things: mostly wash cloths and makeup remover squares knit in organic, undyed cotton. They are sweet little luxuries that make me feel pampered while also saving a lot of waste (disposable makeup pads), and I hope others will feel the same. I hated the super-thin synthetic wash cloths they sold for babies when I was a new mom, and I'm going to encourage them as baby gifts, too.

I've struggled with depression this spring. Nothing seems right-the unsettled weather, the absence of my father, the illness that kept my daughter from finishing her semester, the chaos in some of my relationships...I go from painful, stiff mornings when I wonder if I can keep this up to more active afternoons when I am giddily grateful that my meds have glued me together for one more day. I automatically work to boost my mood, but that constant striving takes lots of energy and concentration. I also try to maintain a stable schedule, which means I've got to stop rambling and go to bed. Rest is a good thing.

Peace.